A good day

I read most of the posts, but don't often post. I usually am feeling too negative, and don't want to bring others down.

Today is another day!

I've had such a good day, the first 'good' day I've had in over 2 months. It feels so good to have been able to do some manual work. I have Myasthenia Gravis, an autoimmune neuromuscular disease, that leaves me weaker, the more activity I do. During the last 3 months, they've (the Dr's) have put me back on prednisone, it was at 125mg/day. but is now down to 50mg one day and 75mg the next. Believe me, it does make a difference in reducing even that much. I'm also on cyclosporine for further immunsuppression. These treatments have had some awful side effects, and I haven't seen any benefits.

Today though, I was able to get my teeth cleaned and not use a bite block to keep my mouth open. I was able to walk the dog for 1/ hour, and in the afternoon, I was able to sweep the deck. Now it may not sound like a lot to some of you, but yesterday, standing was a chore. Most days, I brush my teeth and by the time I'm done, my arm feels like I've done 100 arm curls. Climbing 1/2 flight of stairs makes my legs feel like I've run a marathon, that jelly like feeling when you don't know if you're going to fall or not. I haven't choked today, yesterday, well I won't get gross, but it wasn't pretty.

Even having this one day, it's so renewing! There is hope. I feel so much better mentally, and emotionally after having a day like today. A day when I have done some physical work. I've got something to show for my effort.

I guess I'm just greatful. I've had a good day, the best in about 3 months, and I just want to shout it out. Thank you to the powers that be, for making it possible.

Thanks for letting me ramble like a fool, and for being here. Although I usually lurk, I do send prayers for those when asked, and am thankful for this good day.

Linda